I love my home, although since my husband's diagnosis we rarely venture far from it. When someone is struggling for every breath, it's not easy to get away and even though my home equals comfort and love, there are days that the walls seem to close in and it becomes tinier and tinier...
We all loved to travel and have a bit of gypsy in our hearts. I knew it was time to get away and made arrangements for the three of us to stay at a hotel that offered themed rooms. When I announced this to my hubby, he had a bit of a panic attack. Would he be able to do this? How would it work? I literally got down on my knees and with tears welling in my eyes, I told him that he would have to trust me. In the process, perhaps we will create another wonderful family memory together. Which we all so needed...
We would take it at his pace. All the arrangements have been made - a rented portable oxygen unit and his bags were already packed.
He did trust me.
The drive was only an hour and half. It's funny how we were trading our home to stay in one, little room. But watching his face as the countryside rolled by was precious. The room was fantastic. It was in the theme of a sea-cave and included a waterfall, jacuzzi, multiple aquariums and a bed within a gigantic oyster shell! The hotel made arrangements for an air-mattress by the fireplace for little Scott. We had a take-out dinner on the bed, laughed and watched movies. We learned not to put bubble bath in a jacuzzi. It was a blast and more importantly, it was refreshing to our souls.
During our stay, I fell in love with a goldfish in one of the aquariums. On the ride home I told my husband that I was going to miss that fish, and he told me that I get attached too easily. I think he is right, because I certainly am attached to him! I do not know when we will have another chance to have another adventure like that, although I'm glad we took a leap of faith and jumped out of the bowl.
this touched my heart when my heart had no connection to you or your family…. you have a gift to deliver a message to people and families going throughout the every day struggles of this disease. I thank you from the bottom of my heart for having the gift to make me want to read what your knowledge has to offer. ….. I wish I would have had the strength to read sooner…. Thank you again…
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I am so happy to read that you were able to get out even for a little while. Thanks for your help on my blog. It still a work in progress. I am looking for your clock. I found the website, but I do not know how to find it in gadgets. Love Harvest Moon. Think I might need to add the player. Hope you don't mind.
ReplyDeleteI would also like to know more about how your husband felt leading up to diagnosis and how much oxygen he is on. Thanks
Dearest Ruby, Your words and support mean the world to me. It can be a difficult topic to read about, especially when our lives have been touched personally by Pulmonary Fibrosis. I am glad you are here.
ReplyDelete"Just Breathe" your strength to write about having this illness is to our benefit! How you can do that and bake Blueberry Pies at the same time amazes me. Harvest Moon is my hubby's and my song to eachother and even though it was years ago that we found love within that song, I would have never imagined how true the words would become. Because for me, it would be a dream come true to one day "see him dance again." xoxo
Christina, you have given a wonderful gift to your husband, your family and to you, a memory to treasure always. It sounds like you picked the perfect spot and I am intrigued about the bubble bath in the jacuzzi :)
ReplyDeleteThinking of you all and saying a prayer...
Jeanne xxx