Breathing

An honest description of one family's struggle with a life threatening illness...

Wednesday, July 23, 2014


Posted by River-Rose at 7:50 AM No comments:
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When our family learned that my 49 year old husband had Pulmonary Fibrosis, we didn't even know what it was or what it meant. Since his diagnosis, we have learned that it is a serious and progressive disease which consists of the scarring of the lungs.



There is no definitive cause and no definitive cure.



It took my husband's life and the lives of countless friends that were made through learning about the disease.



This blog is meant to journal our personal experience and to help raise awareness about Pulmonary Fibrosis.







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BREATHING on...

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EMAIL

snakeriver.rose@gmail.com



Resources

  • Home
  • Coalition For Pulmonary Fibrosis
  • Hospice 101
  • IPF Today
  • Know IPF Now
  • National Transplant Assistance Fund
  • Patients Like Me
  • Pulmonary Fibrosis Foundation
  • Share Life
  • The Canadian Pulmonary Fibrosis Foundation
  • Pulmonary Fibrosis Trust (UK)
  • National Jewish Health
  • Lungs & You
  • The Care Givers Space

DON'T WAIT UNTIL DIAGNOSIS...

DON'T WAIT UNTIL DIAGNOSIS...
Pulmonary Fibrosis kills as many people each year as Breast Cancer- LET'S FIND A CURE-NOW!

Countries

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Pulmonary Fibrosis Blogs and Groups

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    6 years ago
  • Pulmonary Fibrosis: Clearing the air
    Hi everyone. The National Institutes of Health has funded our Families At-Risk for Interstitial Lung Disease (FAR-ILD) Study! We are actively enrolling men...
    7 years ago
  • Reality Gasps
    Originally posted on The Manifesto: I’ve been a little paralyzed to write since the utterly unexpected popularity of my “Depression is a Trip” post. How do...
    9 years ago
  • Pulmonary Fibrosis News | Scoop.it
    Learn more about Genentech helping Pulmonary Fibrosis Foundation programs. See it on Scoop.it, via Pulmonary Fibrosis News
    9 years ago
  • Living with Idiopathic Pulmonary Fibrosis
    I was first diagnosed with IPF in 2002 by chance. I had had a couple of doses of pneumonia type symptoms and feeling unusually unfit at my workplace reque...
    12 years ago
  • Wainwright-Wanderings | Facebook
  • Inspire - Pulmonary Fibrosis Foundation Caregivers Support Community - All posts
  • SUMMIT4PF.COM
  • Breathless
  • My Journey with PF | Facebook
  • Inspire - Pulmonary Fibrosis Foundation Patients Support Community - All posts
  • Blog « The Next Breath
  • Pulmonary Fibrosis Resources Resources | Breath Matters | Support Group of Virginia

How You Can Help

  • Get Involved!

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